Crowd-sourced, curated resources

We are continuously evaluating and curating the best resources for truly patient-centered care.  Please help us maintain this list and find more resources.  It takes us working together to make healthcare what it could and should be – of the people, by the people, and for the people. 
Click here to drop us a line regarding resources.  Thanks!

Cancer

When we first learned of Cancer Commons I immediately texted their info to a friend with cancer.  Literally within a couple days they had obtained valuable information and the course of care was changed.
The concept of bringing the right elements together to best help patients get the best care is so obvious, and yet it is taking a huge effort outside of normal processes to make this happen.
Founded by a tech and internet pioneer, inspired by his own journey with a life-threatening cancer, we are grateful for Cancer Commons continued work to get the best life-saving treatment to those whose count-down timer is ticking with cancer.

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Surgery

Patients United Surgery Kit

What do you get when you get a group consisting of surgeons and other physicians who deal with surgery, patients who have had many more surgeries than they wished, designers, and patient advocates – all working together to create guidance for what they would want when they are the patient?  An amazing, empowering patient "kit" to change their surgery experience and that of many more.
This is not just more info.  This kit contains insider info, what you need to require of your doctors before you consent to surgery, how to know what you don't know, how to best prepare for surgery that is almost never covered, how to deal with common issues after surgery with patient-sourced, real-world solutions, etc, etc.  AND work to make the surgical process better for other patients that will follow you.

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